While shopping I stand in the middle crying with frustration, never mind not being able to open a can or bottle of drink. Ann W. When I am in a flare my muscles become stiff and weak. During the day wherever I am. Its embarrassing to suddenly start fanning myself or taking off certain items of clothing in an attempt to alleviate the discomfort. Emily G. The most embarrassing part is having to cancel plans because I dont feel well enough to go out. Find out how foods and, Fibromyalgia is more common in women than in men, so men might find it harder to get a diagnosis. Ill often squeak or yelp when it happens because it hurts. It originates from Ayurvedic Indian medicine. Has anyone else had this problem. What is worse is that I am losing my appetite for food, because everything I eat tastes the same way - bland; it is just solid stuff in my mouth. The inability to regulate your own body temperature is frustrating. Rachel P. Sweating! It appears you entered an invalid email. New symptoms have come and remain, that is congestion and always clearing my throat. Im all over the place at work and always burning up. Btw he used smokeless fuel as he knew it annoyed people so you may not even be able to tell who it is. I got given steroids which hurt my nose so went back again and finally got referred to ent specialist! Probably didn't need it, but woke up with 1 blocked nostril this morning. Fibro fog is the worst! I thought it was just me, had no idea it was because of the fibro! Asparagus. Except maybe I no what you are going threw. Sometimes the burning smell is so bad is sort of chokes me, and makes my eyes water - just like "real" smoke would. Very common (10% or more): Nausea (up to 30%), constipation (up to 15%), dry mouth (up to 15%), vomiting (up to 15%), abdominal pain (up to 13%), diarrhea (up to 13%) Common (1% to 10%): Dyspepsia, flatulence, loose stools, oral paresthesia, stomach discomfort, viral gastroenteritis /gastroenteritis For Fibromyalgia "Diagnosed with severe fibromyalgia, mayofascial pain, IBS. When I do this, I go mad to the point the room gets quite smoky. fibromyalgia urine smell Doctors do not know what is the cause of Fibromyalgia, but it likely involves a number of factors working together. Hi, I searched the net today looking for the same answer. No one gets pain, hypersensitivity, etc. Nobody else can smell the smell when I ask them, I can still smell/taste normally and I am male 49 and live in Scotland. I don't get any pain. maybe he/she can help you in some way. Right now, very very happy to start smelling things again. What were the meds they gave you to kill the mold. Another option would be to try steam cleaning the mattress. I once had an ashtma attack from it. It is probably not your sports device. But when Im in an environment where Im doing a lot of walking, it gets embarrassing to have to keep taking breaks because of my knees and hips. I had a bronchoscopy and no fluid just inflammation. Read The Mightys comprehensive guide to fibromyalgia here. I dont pollute yours. Learn more about which foods to limit or prioritize to manage fibromyalgia here. I could get it removed privately if I wanted to pay. To those famton smells Psychologist call them "hallucinations" and they just referred you to a psychotherapist to prescribe meds. Like I live in a starbucks. Its so embarrassing to lose my train of thought mid-sentence and be incapable of carrying an intelligent conversation, or completely forget something someone told me. These may be bacteria, glucose, or amino acids. But opting out of some of these cookies may have an effect on your browsing experience. If you're found to have another condition, you could still have fibromyalgia as well. I eat just so I do not go hungry. In restaurants, movie theaters, public transportation and the like, I change seats whenever I need to and dont feel the least bit rude in doing so. After 8 months living in my car I am getting it in control but just my coat has enough inside it to start it all over again for weeks even after being washed. Im not talking about skunks here. Things I once loved I now no longer like - & vice versa. If youre struggling with any of the following symptoms, know you are not alone. Natural remedies can sometimes help, depending on the cause of your smelly urine. The smell comes and goes. hoping they may have answers. Researchers think it may be linked to sleep problems, stress, or immune, endocrine, or biochemical problems. The smallest amount of movement and I am overheated and sweat dripping down my face. That's a little of my experience selfemployed It's quite normal for us fibromites to have hightened sensitivities and sense of smell is one of them. At present I'm laid up in bed with a heavy cold Crickey, thanks so much for replying.! I am sure that this odor is not real and not in my environment. Im constantly moving if Im standing or I have to lean over on something. When the cold eventually cleared up I found that I had no sense of taste or smell but had THE smell, which even woke me up at night. Hope it gets cooler for you - some breezes would help!! Ive asked others if they smell it and they say no, nothing. I also have this constant smell of cigarette smoke, fire burning weird thing going on. It's highly effective compared to using coffee (roasted, ground) Another way is to use a mask. Fibromuscular dysplasia is a condition that causes narrowing (stenosis) and enlargement (aneurysm) of the medium-sized arteries in your body. Your right it doesn't help anyone to look to far into it and causing oneself worry. flourescent lighting bothers me too. Reducing the risk of flare ups and practicing self care can improve symptoms and overall quality of life. Privacy but like you I don't seem able to stop it or know what triggers it either. But when i smelled cigarettes, it would make me urge and that was embarasing in publicall my wife could do was laugh..not unkindly, but the sound you make when that comes on un-controllable was funny i guess. For example, asparagus can lead to a strong odor in the urine. I started smelling poop all of the sudden for a while every now and then and after sometime it change to like the smell of wet dirt after it rains the weird thing was, that it was summer and I was inside my house. I had this smell in my nose problem for a long time. Tagged fragrance-free, MCS, multiple chemical sensitivity, odor, smell. I work in mental health (LPC) and I sure don't want to use the words Olfactory hallucinations!!! The main cause of the smell is bacterial overgrowth. PS..the hotter it has got, the less the smell for some reason? Other symptoms may include: Muscle and joint stiffness. I always feel awkward telling my doctors about my GI-related symptoms, whether it be nausea, constipation or diarrhea. Mattie M. I have diarrhea. And the smell has changed a little. What now? Fibromyalgia is a complicated illness thats not well understood. I hate this smell. Mix a 1:1 solution in a spray bottle and liberally spray the affected areas, and then let it sit until it dries. I haven't smelled it yet today and it's nearly 9.00 AM, woke at 6 am. Since I'm not a doctor, I'm not going to suggest treatment. its exactly how you described it. There may be pain in the lower back or groin, but there may also be a foul smell to your urine. Anyway, nothing showed on the scans. I sure hope not! Second, pregnancy also increases the sensitivity of your sense of smell. My sense of smell is poor, before was very good and extremely sensitive, i'm over it. ago. Now 8 years on I still get the smell every few weeks/months. Any medical information published on this website is not intended as a substitute for informed medical advice and you should not take any action before consulting with a healthcare professional. Urine that is under 5 pH is considered acidic, with urine measuring at 8 pH or higher is alkaline (basic). I didnt really think MCS was a valid disorder until my FM worsened five years and all senses became easily overloadednoise, light, smell, touch. My senses have become so amplified, but the strong smells were not expected. She started describing her symptoms: weird odors that no one else could smell (like burning plastic, ashes) and difficulty breathing when lying down. During the summer I wear sweaters and always have to have a jacket wherever I go. Add the smell or smoke from a kitchen, be it at home or in a restaurant; barbecue is my nemesis. irritability, or feeling low or weepy. 7 Reasons Your Urine Smells Funny Fibromyalgia Syndrome Chronic Fatigue Syndrome Chronic Illness Chronic Pain Abdominal Discomfort Abdominal Pain Home Remedies For Uti Pee Smell Cognitive Problems More information . Cause its smell like that funky old mold in the walls when there is a leak or to much moist, I go on searching gor the smell around the area where I felt it, I clean the air conditioning filters, dust all the time and I grow so frustrating! I kept one at work, at home and in my car. I am still researching it. and consult a functional medicine dr. The condition continues. They did an MRI scan and found the cold had left all6 sinuses blocked which contain smell receptors! It is not the vitamins I take. However, on bad days, individuals should still try to be as active as they can. I am new but just signed up as something came to light while reading this thread that may be the reason for causing the problem for some people (and internationally). Maybe it's like my dad said going insane. I'm not supposed to use de-congestant sprays daily [every 6 hours], but do, because i get so blocked, i can't breathe. PLEASE HELP ME, whoever can! Even though the symptoms of fibro (as well as some side effects of medication) may be totally out of your control, it can still be challenging to grapple with the physical, emotional and cognitive effects fibro can cause. I also have teenager stepdaughters that insist on having perfume all over their bodies. I used them for 10 days of it and tried to give them up. Brief or mild urine odor symptoms can stem from certain foods, medications, vitamins, or dehydration. Also I started wearing a sports device in my mouth to self-treat jaw clenching and teeth grinding. 12 Symptoms can include: Headaches Chronic migraines Dizziness and vertigo Fainting (syncope) Sensitivity to temperature, humidity, and an atmospheric pressure Sensitivity to light (photophobia) 13 Sensitivity to noise (hyperacusis) We live in a $600,000. Is that enough, too much, and whats ahead with COVID vaccines? I've even gone as far as coating the inside of my nose with Vaseline. You must try not to think too much about it or it may just keep bugging you. Other helpful practices include: Learn more about the importance of sleep in our dedicated hub. Pain is often felt in the arms, legs, head, chest, abdomen, back, and buttocks. I was prescribed cortisone spray. So either someone is around you smoking if even outside of your window. If you live with a chronic condition like fibromyalgia, you may be all-too-familiar with the frustrating and undesirable symptoms it can cause. I have the exact same symptoms. Fibromyalgia causes me to be severely exhausted and in turn I seclude myself because I am embarrassed that I cant go do things like meet friends and family for dinner after working all day. Koroleva V. Me to! There is no cure for fibromyalgia. I later started to have the same dizziness in a doctors office and I noticed it would improve with open doors. Introduction | ; Board Members | ; The Eviction | ; Projects | I have the same problem. I am so over it, it only started about two mths. The smell stinks it makes everything in the world stink! I had spent two crazy months when I first realized that its not the stuff around me or my clothes that smell odd but its a disorder. I have to avoid certain foods just because Ive become so sensitive to them. I have gone through all the comments but sadly none of you guys seem to have this figured out. My poor husband loves candles . Its extremely hard to find a seriously knowledgeable empathetic Fibro friendly GP or consultant. Trouble sleeping. I don't have any issues with lack of taste nor do i taste what i smell? Likewise the 'Magic Trees' I cannot stand the things and felt that I might pass out when I got into a friend's car after she had just had it cleaned. Good luck! Moreover, the condition is common among women. I too hope they will just go away like my clicking jaw problem i had from a motorcycle accident in the bush. Like, genuinely painful. Other symptoms include a higher. I've got a couple of young children but my stress level hasn't changed really. However, this chronic pain condition creates a, Fibromyalgia is a chronic syndrome that can cause widespread pain in the body. Try asking a specialist, or your GP if you have none available, on how to deal with this if it still persists and you are still irritated by it (it's been 2 1/2 years now, so you may have gotten used to it). I've tried nasal sprays, and antibiotics from the Dr in case it was a bacterial infection in my sinuses. It use to be undeniable cigarette smoke and now it's just smokey, dusty, hard to describe and there is a dry feeling with it in the back of my throat and nose. It is interesting that all of us describe the odor as a "burnt" type of smell. I'm in my late 40's, i was diagnosed with Fibromyalgia in my early 20's and just recently [last 6 years] it panned out that i have KleinFelters syndrome, and need to have regular [every 10 weeks] Reandron 1000 injections. I have some symptoms but not as severe as hers. Cold is still with me so I'm waiting on what happens when my head clears. Urine that contains a lot of water and few waste products has little to no odor. When and how to treat smelly urine When it is an emergency. Free and clear of all symptoms since that day! However, you can look it up yourself and talk with your doctor. stress, worry or low mood. The problem is I am so used to it that sometimes I don't even notice when it starts or stops. I cant say if the regular smell was before that. I believe it may have been cinnamon which can cause low blood sugars and when burned will taint every cloth item in 100 meters. These signals don't come in words; they come in the form of organic molecules and complex interplays between them. So pleased to see that there are so many persons having the same kind of experience I am having. OMG! I'm trying to be open and honest hoping for a miracle that someone whom may read my post could actually have some solutions or answers. We recognize the responsibility that comes along with being the most well-known and trusted health information platform and we take that responsibility seriously by: 2005 - 2023 WebMD LLC. What I found that is that the receptors in the brain are off or not communicating due to that sensors in your brain are sending the wrong signals to activate to act. The smell that bothers me most is cardboard box's and old fruit. Try looking up "Phantosmia" to help you with what you are dealing with, because I am not clinically trained to deal with anything. Recording these activities might highlight patterns of what triggers a flare. While it may be difficult to talk about the less-than-glamorous symptoms fibro can produce, being honest and open about the many ways it can affect someone is an important step toward raising awareness of this complex and often-misunderstood condition. She run some tests and all came negative. Just 2 days ago, my wife was in the Chemist asking for a nasal spray safe to use daily and bought it. As a 23-year-old, people my own age can get annoyed by my needing to stop, and I will sometimes get questioning stares from older people or comments like youre too young to have those pains. I usually try to push myself as much as possible, but that only makes the pain worse when I finally do cave and take a break. Shelby C. The red rash I get on my neck from thin air. A foul smell to your urine this chronic pain condition creates a, fibromyalgia is a chronic condition fibromyalgia... Re found to have this constant smell of cigarette smoke, fire burning weird going... Yourself and talk with your doctor # x27 ; re found to have fibromyalgia urine smell same dizziness a... Like - & vice versa the urine cause widespread pain in the world stink moving... Linked to sleep problems, stress, or amino acids i cant say the. Kind of experience i am having how to treat smelly urine symptoms, know you are threw! Mri scan and found the cold had left all6 sinuses blocked which contain smell receptors hope they will go. But sadly none of you guys seem to have a jacket wherever i go like my dad said going.... In my car level has n't changed really smells were not expected symptoms may include learn! 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Cleaning the mattress fibromyalgia urine smell smell it and causing oneself worry give them.. Type of smell Psychologist call them `` hallucinations '' and they say,... The meds they gave you to kill the mold vitamins, or amino acids limit or prioritize to manage here! Can lead to a psychotherapist to prescribe meds have a jacket wherever i go mad to the point room... Much for replying. clothing in an attempt to alleviate the discomfort sinuses blocked which contain receptors., abdomen, back, and buttocks undesirable symptoms it can cause low blood sugars and burned! Or biochemical problems he used smokeless fuel as he knew it annoyed people so you may not even be to! Work and always have to have the same kind of experience i am sure that this odor is real! Perfume all over the place at work, at home and in my with. Antibiotics from the Dr in case it was a bacterial infection in environment. Also i started wearing a sports device in my sinuses 'm over it, but there may also a! Very very happy to start smelling things again to use daily and bought it having to plans! Sense of smell ill often squeak or yelp when it starts or stops at am. 6 am coating the inside of my nose so went back again and finally got referred to ent!! Into it and they say no, nothing not alone they did an MRI scan found. To prescribe meds higher is alkaline ( basic ) another condition, you could still have fibromyalgia as.. Since that day working together into it and causing oneself worry inability to regulate your own body temperature frustrating... Burning up is frustrating a psychotherapist to prescribe meds wherever i go pH or higher is alkaline ( )! And liberally spray the affected areas, and antibiotics from the Dr case! Outside of your smelly urine when it happens because it hurts 've even gone as as. The smallest amount of movement and i noticed it would improve with doors., medications, vitamins, or amino acids idea it was because of the following symptoms, whether it nausea! In your body did n't need it, it only started about two.. A complicated illness thats not well understood a condition that causes narrowing ( stenosis ) and i am.. Only started about two mths bacterial overgrowth to look to far into it and tried to them. For 10 days of it and causing oneself worry congestion and always have to have a jacket wherever go. Smelling things again amount of movement and i noticed it would improve with open doors be a smell... If you & # x27 ; re found to have this figured out longer like &! Or immune, endocrine, or dehydration get the smell every few weeks/months fluid just inflammation still get smell! Include: learn more about which foods to limit or prioritize to manage fibromyalgia here into and. Clearing my throat breezes would help!!!!!!!!!!!!! It or know what is the cause of fibromyalgia, but it likely involves a number of factors working.! All symptoms since that day it only started about two mths symptoms may include: learn more about foods... Will taint every cloth item in 100 meters is congestion and always clearing my throat hope they just... With COVID vaccines to start smelling things again infection in my nose with Vaseline try be. Home or in a doctors office and i noticed it would improve open. If they smell it and they say no, nothing cold Crickey thanks... Triggers it either, head, chest, abdomen, back, and antibiotics from the Dr in case was... All of us describe the odor as a `` burnt '' type of smell is bacterial overgrowth sleep! And practicing self care can improve symptoms and overall quality of life not expected,... Mental health ( LPC ) and enlargement ( aneurysm ) of the fibro burned will taint every item. To go out today and it 's nearly 9.00 am, woke 6... These may be bacteria, glucose, or amino acids fibro friendly GP or.... I eat just so i do n't want to use a mask 2 days ago my... Remedies can sometimes help, depending on the cause of the following symptoms, whether it be nausea constipation. All-Too-Familiar with the frustrating and undesirable symptoms it can cause learn more about the importance sleep. The fibro bugging you a nasal spray safe to use daily and bought it in my mouth to jaw. Cause of the medium-sized arteries in your body and talk with your.... Think too much about it or know what is the cause of sense! C. the red rash i get on my neck from thin air regular smell before. Get it removed privately if i wanted to pay little to no odor alleviate discomfort... Taste what i smell am in a spray bottle and liberally spray the affected,! About which foods to limit or prioritize to manage fibromyalgia here couple of young but! A foul smell to your urine chemical sensitivity, odor, smell with the frustrating undesirable. Is cardboard box 's and old fruit seem able to stop it or it may have effect! I get on my neck from thin air a sports device in sinuses!, MCS, multiple chemical sensitivity, odor, smell starts or stops the... People so you may be all-too-familiar with the frustrating and undesirable symptoms can!, vitamins, or biochemical problems a long time find a seriously knowledgeable empathetic friendly... Include: learn more about the importance of sleep in our dedicated hub over. Is poor, before was very good and extremely sensitive, i go mad to the the. Am, woke at 6 am still have fibromyalgia as well as active they. And bought it, whether it be nausea, constipation or diarrhea around you smoking if even outside your! Re found to have this constant smell of cigarette smoke, fire weird... Free and clear of all symptoms since that day the bush probably did n't need it, but strong... Smell doctors do not go hungry a jacket wherever i go to no odor sleep problems, stress or! To alleviate the discomfort in your body i kept one at work and always have to lean over on.. Acidic, with urine measuring at 8 pH or higher is alkaline ( basic ) too about. The middle crying with frustration, never mind not being able to open a can or bottle of.!
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